Friday, October 23, 2009

Tips from the Trenches

I spend quite a bit of time on this blog talking about how the experience of cancer feels, what the emotional impact has been, and how it has influenced my life spiritually. All of those things are really important, but there are also just the plain, practical things that can help other people who are going through this just behind me, with me, or might have to deal with it in the future. This post is about those things.

Some of the best advice I ever got about breast cancer came from a wonderful woman that I have never met in person, but feel like I know because I got the idea for this blog from hers. A friend of hers that goes to my church sent me the link to her blog, and I read every word she ever typed about her really tough trip through this nasty disease. Today, I am happy to report that she is a survivor. Having the insight and guidance that she provided me was priceless. Thank you so much, Sheri! Her advice to me was this, "Don't get cancer." Unfortunately, it was too late for me on that one, but it did make me laugh.

The other piece of advice that she had for me was about the Neulasta (white count booster) shots. You see, chemo kills all of your fast splitting cells. Cancer cells are fast splitting so that's why it works on them. Well, so are your white blood cells and other things like you hair. Since it can't discriminate between good and bad cells, it kills all kinds. So, many times either because your count drops too low or as a preventative measure, you have to get these shots to boost your body's production of white blood cells. Since these cells are created in your bone marrow, a common side effect of the shot is bone pain. Take it from me, you DON'T want this. I spent my week this week dealing with it. Sheri struggled with this as well. He advice to me was to get pain medicine and take it BEFORE I had the shot.

That is GREAT advice. Here's my two cents to add to that. You don't necessarily need pain meds from your doctor. Advil did the job for me after the first round. I just didn't know it until I failed to do the same this time around. I had taken Advil every 6 hours for a full 2 days before the first shot for cramps. So, I was unknowingly treating myself for the shot 2 full days before I got the shot and 2 days after. Since I had no pain from it, I just thought I was having no effects. So, this time I didn't "pre-treat". The result was a very hard week that cost me a day of work and required prescription meds. Next time, I will begin taking the Advil 2 days before and through the day after like I accidentally did the first time. Then, I have the prescription only if I need it. I'm not going through that again. So, don't follow suit. Thank you, Sheri for the advice because I wouldn't have know why there was a difference without it.

One of the other things that made such a difference for me was something that Mom and I figured out all by ourselves the first week after surgery. When you have this surgery one of the most inconvenient things that you have to deal with right away is the stinkin' drains. These things are a complete nuisance, to put it nicely. So, you're cut up, medicated on opiates, and have 4 tubes with bulbs on the end of them hanging out of your body. Not fun. Then, they tell you to pin these things to your pj bottoms. You don't want them pinned to your shirt because they're gross, so you go ahead and pin them to your bottoms. And that's all just fine...until you have to pee.

So, since you're operating at a diminished capacity (reads: drugged out of your mind on narcotics), you forget that they are pinned to your pj's and tug away at them by mistake when attempting to get the pj's down. Ouch! Now on the off chance that you remember to unpin them, then what? How do you do anything else when you're holding 4 drains?? You can't just let them hang, so now what? Your hands are full, you're still fully dressed, and desperately need to pee! Plus, you're still drugged on the narcotics so your problem solving capacity is COMPLETELY absent.

The solution is simple, really. Bring a 1.5" wide satin ribbon to the hospital with you. Make sure it's long enough to go around your waist and tie in a bow. Each of these drains has a plastic loop attached. If you string the bulbs on a ribbon and tie it around your waist, they stay put, are out of sight, and don't interfere with peeing while on heavy drugs. The drains are secured and completely independent of your clothing. PRICELESS advice I assure you...

Then finally, whatever you fear most, face it and become a boy scout. What I mean by that is "Always be prepared." Any of you who have been following my journey know that for me this was the hair thing. If you are like me and worried about the hair thing, here's what I've learned about that.

First, you don't need to buy human hair. You might think you want it, but you probably don't. For me, this was decided as soon as I saw the CSI Miami where the lady got busted for murder because her human hair extensions had been cut off a cadaver and had microscopic mites as a result. With my bug phobia, even the mere mention of the possibility was more than I could handle. Besides, you just won't believe what the quality synthetic hair looks like these days. And real human hair has to be styled. If it rains, it falls and frizzes. Synthetic doesn't. It looks great no matter what and is so real that you just can't tell the difference.

A quality human hair wig will cost you more than $500-$800 for starters. A quality synthetic one retails for between $150 and $300. But, if you find what you want and go to http://www.joshua24.com/ to get it, you can cut that to $75-$150 for the EXACT same wigs. Then, you can get it cut by a professional stylist to make any alterations.

I have one that I paid retail price for at the cancer salon. The service that I received and the support they offered me was MORE than worth the investment. But, for my other looks, it just made sense to shop. So, I ordered those from the site above. Here's the funny part. I now have the hair I've always wanted. It not only looks real, but healthy, shiny, and there's no grey hair or roots to color. I also have 3 different looks that I can interchangeably wear. Plus, I get to do my hair the night before and pop it on just before leaving the house.

Now I've even got the brows and eyelashes covered. I still have all of my eyelashes, but have lost 1/2 of my brows. So, I am already using a brow kit that I received at my Look Good, Feel Better class. The key to looking natural here is that it is not a pencil, but a powder (like eyeshadow) applied with a specially designed brush, It also has a pomade sealer. You can't tell the difference! Although I've never used BeautiControl before, I totally recommend their brow kit. They have that down! And when the lashes go, I have those as well. I found some that look just like my real ones and black glue, too. So even that doesn't have to be a big deal. As long as I can get them on...Stay tuned for that report.

I guess that's enough for one post. I hope that these things are able to help other women that have joined this "club" against their will like the rest of us. There are SO many of us, and we have to help each other through. The good news is that we can. Thank You, Thank You, Thank You to all of those women who have helped me, most of which I have never met in person. I couldn't have made it this far without the things that each of you have taught me.

Monday, October 19, 2009

Wishing Away Time

I have a quote hanging on the wall at my desk at work that says, “If we fill our hours with regrets of yesterday and worries of tomorrow, we have no today in which to be thankful.” I know exactly where I got the quote but have no idea who said it. Unfortunately, the person that quoted it to me doesn’t know either. I wish I knew so that I could give them credit. It’s quite wise.

Lamenting about things that are past is a complete waste of time. There’s nothing we can do to change it. That time has come and gone. If I had it to do over, there are MANY things I would have never said or done. But, I don’t dwell on them because I can’t change them. Besides, I have asked forgiveness for them already and most likely everyone but me has forgotten them. If you haven’t and I was wrong…please forgive me. Feel free to call and we’ll discuss it. I am ready to admit my mistake if you just remind me…

Worrying about tomorrow or next week…Well, we all do that from time to time. Some more than others. I used to be worried about EVERYTHING. I saw another quote once that said, “Worry works because most of the things I worry about never happen.” I used to think that was funny and worth quoting. Really?? It really just shines a light on how futile worry is in the first place. We know we aren’t supposed to worry. Yet, we do. Most recently, I was worried about losing my hair for so long that I sounded like a broken record. And look how that turned out! Not a big deal at all.

Friday I had my second round of chemo. It appears to have gone well. I wasn’t sick this time either. I felt a little queasy today at work, but nothing that the medicine couldn’t manage. I am feeling the effects more than the last time. It seems stronger because it's starting that cumulative effect they warned me about. I guess I could be worried about that, but I haven’t been. If this cancer has taught me anything (and boy has it!) it’s that I am not in control of things. What a relief! I was sick of feeling in charge anyway. It’s a shame to admit, but for me it took cancer to understand surrender. What a slow learner! Still, I am so thankful for the lesson.

So, let’s check the list: No regrets and dwelling on the past. Check! No worrying about tomorrow. Check! That leaves today. Thankful for that…check! Or am I? I hate to admit it, but I realized today that I usually am not. Not really, anyway. You see, I’m tired. Chemo makes you tired. Of course if you’d ask me before I got cancer, I would have told you the same thing. I was tired then. It’s all just degrees of the tiredness. But I found myself thinking, “I wish today was over so that I could go home and lie down.” How many times have I thought that? Have you?

I hate to admit it, but even in my mode that I thought was “thankful” I haven’t been. I have spent a good deal of those days wishing away time. “If I can just get through this day, then I can go home and rest.” Someone asked me on the elevator this morning, “Is it Friday yet?" It’s Monday! You have to wish away five FULL days to get to Friday on Monday morning! How crazy is that? The truth is that we aren’t guaranteed anything but this moment. For some, this will be the last one here on earth. Even if that’s not the case, we can wish away years of time with nothing to show for it if we aren’t careful. Just passing time, making no impact, getting by…

Yesterday I got to spend the day with my dear friend, Meghan, from many years ago. One of the things that I just couldn’t believe as we talked was how much time had passed since we’ve seen each other. Her son will graduate high school this year and she didn’t have a son the last time we saw each other. How many of those days did I wish away? I look at Brayden and see him growing up so fast and know that it will be his turn to graduate before I know it. I just can’t wish those days away.

So, that brings me back to chemo. I’ve got two down and four to go. How can I not wish it would hurry up and be over? January 8th is circled on the calendar for sure! It’s the last one. But in the meantime, how many moments, memories, and days could I wish away just wishing it was over. What would I miss? I want to miss NOTHING. So, I have to learn to be still in my situation. Enjoy the good times while this is going on. There’s so much more going on than chemo. How can I sum it all up in that? I can’t. So instead of making this time something else I “check off the list”, I’m going to accept it as just one thing happening in my “today”, a today that I am choosing to be thankful for.

Friday, October 16, 2009

Under Construction...Inside and Out

This whole experience has been such a trip. I realized today just how much has changed in the last couple of months. When you really take a look at it, it's so much! I think everyone around me realizes that. But the funny thing is that on any given normal day, I don't really feel any different and none of it seems like a lot. I look different, and I am but still feel the same. It doesn't seem possible, but it's none the less true. It's comical really. When you add up all of the stuff, no wonder people look at me weird when I tell them everything is great! How can that be? Let's go through the list...

Well for starters, I happen to be as bald as a cue ball at the moment. I still have a few hanger-on hairs, but basically they've all fallen out. I was so worried about how traumatizing that was going to be. But, here I am in the middle of it and it just isn't. That seems really hard for me to believe. My ex told me last night that I looked like Uncle Fester from the Adam's family when he stopped by to see Brayden. I had just taken a shower and forgot to use my eye makeup remover when I got out so here I am, no hair, and I had giant black circles of eye make up all around my eyes. You know what? I did look like him! Today he told me he didn't mean that. It was more like Darth Vader when they removed his mask. I laughed at that, too. If I had trauma from this, I'd probably be on the news having killed him in a terribly violent manner. But, I laughed instead of doing 30 years near Huntsville.

Ok, number 2. I had my breasts removed! Really?? Really. Chopped those puppies right off. That definitely should have traumatized me. I thought it would, but it just didn't. I can't explain it. We're rebuilding though, Texas style.

I say Texas style because that's what we do here in The Great State of Texas. In other parts of the country there's a ton of historical things. Not in Texas. When it gets old, the shine wears off, we just rip it down and build something new. The "new" is usually better and always bigger than what stood there before. Now, I'm not saying that's necessarily a good thing. It just is what it is. And as of today and my last appointment with the plastic surgeon until my surgery next November, we're tracking for the same on my reconstruction. I hate to admit it, but I just wasn't paying attention when we started with the saline yesterday morning. I wasn't fully awake and was too busy looking at my doctor (reads: eye candy). Next thing I know...Well let's just say, I don't own a bra that will fit me. The good news is that I don't need one for a little while longer because gravity has no effect at the moment. Woo Hoo!! Hey, it's one small perk to having cancer. Still not worth it to go through the whole ordeal, so don't get any ideas. But, a reward of some kind all the same.

I could go on, but isn't that enough to drive home the point? There's really only one explanation for all of this. It's JOY, real, genuine JOY! I've learned the difference in joy and happiness in the last couple years. And what a difference there is! There's also not a single passage in the Bible where it says God wants us to be happy. If you find one, let me know. But you won't because, it just isn't there. It DOES, however, talk about rejoicing in the JOY of the Lord. You see, happiness is dependent on your circumstances, and it is fleeting. It is a thing of this world. No matter how happy you get, it's going to go away either in a few minutes or maybe days or weeks. It wears off, or something about the circumstances change and poof! It's gone.

Joy is SO different. It comes from God, and He alone can supply it. It doesn't go away and isn't fleeting as long as we are focused on living in His will, bringing everything to Him, and trusting only Him to get us through. Our circumstances change, things go wrong, but yet we can still be full of joy. (Even when we aren't happy about what's going on.) This is a really hard thing to understand. That is of course, until you experience it. When I first heard it, I thought that it sounded great, but couldn't see how it was actually going to be possible. For this I am so thankful for our Singles pastor at Fellowship Church Grapevine. Josh taught a class (what I believe to be about 3 years ago) on the study of James. The first thing he had us do was begin to memorize James 1:2-4. Here's what it says:

"Consider it pure joy, my brothers, whenever you face trials of many kinds, because you know that the testing of your faith develops perseverance. Perseverance must finish its work so that you may be mature and complete, not lacking anything."

At the time, I really liked the "mature, complete, not lacking anything" part but was really confused about what it would take to find the joy in trials. I mean, who thinks that sounds good or is even possible?? On the other hand, the mature and complete thing sounds great, right? So, I wrote it down on a post-it and put it up in my desk right in my line of sight. (In fact, even though the ink is fading that same post-it is still there.) I did memorize it and since that day I refer to it (in writing and from memory) anytime I feel challenged. Still, I wasn't sure if it was working on me or not and hadn't made the connection until I was at our retreat this past weekend.

Josh opened up his talk this time with the same verse. I was thrilled about that because over the last 3 years it has become really important to me and an integral part of my prayer life. He told us something different this time though. He said that joy as defined in the Greek means "overqualified for your trials". WOW! How powerful is that? In all of those prayers that I have sent up over the last few years asking for joy in times of what has turned out to be much smaller trials, God was preparing me for this one, the biggest of my life. He knew what was coming Even though I didn't. Now, I am prepared and as it turns out actually overqualified. This round of breast cancer hasn't and will not steal my joy. It can't, you see, because God has given it to me and it is not linked to my circumstances.

With that joy comes something else, too. Philippians 4:6-7 makes us a promise when we turn things over to Him completely, with thanks, and prayer. It is this:

"Be anxious for nothing, but in everything by prayer and supplication, with thanksgiving, let your requests be made known to God; and the peace of God, which surpasses all understanding, will guard your hearts and minds through Christ Jesus."

There's no promise there that everything will turn out the way we want. It simply says that thankfully and prayerfully we turn it over, in this case that's a trial. By doing that I have found peace that surpasses understanding in the midst of my biggest storm to date, and He has given me joy in the process. I still have no hair. I still have 1/2 constructed boobs, and I still have more than a year of this treatment and more surgery ahead of me. But, so what??? I also have joy and peace, two things that I've never had before. It already has been worth it, every yucky little step. I wouldn't trade it for the world because breast cancer has allowed me to finally find them.

So as I sit here in the chemo chair again today, I am overflowing with peace, joy and thankfulness. That’s not to say that I am never challenged with things. That would be a lie. Even yesterday I was anxious about today and how this treatment was going to go. But, I turned it over and back came the peace and the joy. The enemy has lost another round because he and his thoughts cannot dwell where the Holy Spirit resides. Thank you, Jesus for continuing to bless me so far beyond anything I could have imagined, much less deserved. You have made me unbelievably overqualified for this trial, and I am certain that I could never do it without you. That would be completely inconceivable.

Tuesday, October 13, 2009

Camping, Shedding, and Giving Thanks

I'm home from our wonderful weekend retreat at Allaso Ranch and back to work. What a great weekend of teaching and fellowship! I had a wonderful time and met some great people. It's funny how things turn out. I spent quite a bit of time worrying about how it would be going to camp with a shaved head and what it would be like "wearing hair" around a bunch of other people.

You know what? It was wasted time. Everything went fine. No one treated me weird at all, and I wasn't uncomfortable in the least. I'm sure it was strange for some of them. I mean there's a bald lady putting her hair on in the bathroom and she's wearing different hair than she was yesterday. I would think that was strange if I were them.

Of course that was nothing compared to the lady I talked to during breakfast on Saturday morning. She and I had a great talk. After breakfast, I went back to the cabin to change hair. I didn't really think anything of it. It was raining and I wanted to wear my lower maintenance, shorter "Terry Bradshaw" hair with one of my hats. (I packed 5 for the 2 day trip.) It's straight and better suited for camp because the long curls don't fare as well in the weather. Well, I ran into her later that day, and she was extremely confused. She kept staring at me trying to figure it out. It was pretty funny. There were several people I confused with that. But, it all worked out. In fact, my hair didn't really start coming out in an obvious way until I got home from camp. So the timing could not have been better.

I made the decision to shave my head prematurely (meaning before it started coming out) based on what I thought to be the bad timing of my retreat. Now, I am so thankful for that timing! I say this because it made me go ahead and shave instead of waiting for it to come out on it's own. One of the things that I most wanted to avoid is waking up in a bed full of all my curls. I didn't have to because, the timing of the retreat ensured that I wouldn't. I couldn't go off in the woods and have it come out there, so I had to deal with it before.

I hope that no one reading this has to deal with cancer and chemo in the future. But if for any reason you do, think seriously about shaving before it starts to fall out. My doctor was spot on with the prediction of when it would go. It started on the 14th day and came out in masses on the 17th. That's exactly what he said would happen! Knowing this and getting shaved a week beforehand, I had the opportunity to get used to my wigs and get comfortable before the shedding began. Now, it's not traumatic at all. Not for me anyway, I just can't wait for it to be over.

It has been traumatic for others in my family though, especially my mom. See, right now, there's still some left but it's not really attached. So if you grab it, it will come right out in your hand with no pulling. Well, I can't keep my hands off of it once I get out of work and get the hair off. It just seems so weird to me. So, I can't help but demonstrate this over and over. So far, I think I've grossed out everyone that I've shown, which is just about everybody. Although, no one has taken it like my mom. She can't handle it at all. So, of course, I can't stop doing it and showing her. I guess in some ways, we never grow up. I still think it's funny even though she's not laughing. Now I know where Brayden gets this behavior. All this time I've been blaming it on his dad...

I guess none of this has been as traumatic as I thought, and for that I am so grateful. Yes, unbelievably so, even the hair...Isn't it funny how that works out? I worry. I imagine things as I think they will unfold. And it just never seems to work out that way. Nothing ever seems to live up to my horrid imagination. Camp was great, wearing hair isn't as bad as I thought, and shedding like a cat hasn't bothered me a bit. So why in the world was I worried?

Tuesday, October 6, 2009

Off with the Hair and Back to the Laughing…

I figured something out in the last couple of days. I am entirely too comfortable with this cancer thing for the rest of the world. What’s funny about that is that before I had cancer, I would have been one of the people that walked by me yesterday uncomfortably, made sure to look me directly in the eye, and say nothing about the hair. Then I would have obsessed about whether or not I did/said anything wrong. That’s crazy! But, nevertheless true.

Believe it or not, I’ve learned a lot of how people want to be treated from having this cancer and even more from my 5 year old son. I know that I’m supposed to be teaching him stuff, and I am every day. But, he has taught me things as well. And I don’t mean things about parenting. I mean Christ-like acceptance of others. It’s strange, but he has an acceptance and kindness of spirit about him that is almost not of this world. It manifests out of nowhere and when you least expect it, but it also never leaves him.

I first noticed it when he was 2 and we went to see Grammie in the nursing home. I don’t like nursing homes. Who does? They always have a bad smell and there is so much sadness there. I didn’t know how he would react because I was terrified of them when I was a much older child even. We used to go and sing to the residents at Christmas and things with my church group growing up. As bad as it sounds, I couldn’t wait to leave and some of the things I saw really scared me. Not him. He walked in that place like he owned it, talked to everyone like they really mattered to him, and wasn’t scared of ANYTHING.

There was one gentleman who had lost his legs to diabetes and was terribly overweight. This made his legs look like giant tree stumps in his wheelchair bigger around that Brayden’s entire body. It was a sight like nothing I had ever seen exactly and chest high to Brayden. Truthfully, it was quite shocking to both me and Mom. He didn’t say a word about it. Instead they discussed ice cream. I didn’t know what to say, but my 2-year old did. We were all in line for ice cream in the nursing home. Instead of staring at or talking about his legs, they just discussed ice cream. They were on the same wavelength, and Brayden made his day.

Sunday when I asked him to help me pick out hair for church, he said, “Don’t wear hair Mommy. You’re beautiful without it.” I would never have said that to my mom at that or any other age. Instead, I would have been making sure that she had the “right” one on at all times (even at home) and in constant prayer that it wouldn’t shift or blow off for the sole purpose of embarrassing me. I guess that’s also the difference between boys and girls. I was born to be the mom of this boy, that’s for sure.

So, back to my point…Day 2 in the office with the wigs. I wore the one that looks most like my own hair. It’s Mom’s favorite and my least favorite, for now. But, it does look the most like me. Someone who didn’t know me well or didn’t pay attention could think nothing of it. In fact I had a co-worker in the elevator ask me when I was going to start treatment. So, if incognito is the goal, mission accomplished sort of. Anyway, the cap on this one is so much itchier than the one I wore yesterday since I still have stubble on my head. (I’m told that will be different once it falls out sometime in the next week.) But for now, it is UNBEARABLE in that particular wig. It felt like the aftermath of a bad beach prep or stuffing stubble covered legs in tights three sizes too small. By 10:00 this morning I was in trouble and my head was bright red on top. So, I forfeited my normal lunch time and lunch money to run to Target and get an inexpensive microfiber hat.

I know what you’re thinking…another hat?? No, this was not another manifestation of my addiction. This was different. I bought this one for a scalp emergency and for everyone else in the office. It’s to leave in my desk for days like this one. The hair had to go! So, if you’re counting, it took less than a day and a half to get comfortable enough to be “hat only” within my department. But, as much as I don’t care it seemed inconsiderate of me to walk around the building with nothing but a hat on my head. Especially with all the ignoring the wig that was going on yesterday. (Still Funny to me…) So, when I get up and leave my desk I put back on the hair. It’s kind of comical really, the whole on/off hair thing. Hair on...hair off. Hair on..hair off. Hair on...hair off. Like the Karate Kid, only with cancer.

But here’s the thing…Cancer doesn’t give me the right to make everyone else in the building feel uncomfortable at work. There’s a whole lot more people here without it than with it, and they should be comfortable at work regardless of what’s going on with me. I don’t get to be entitled to walk around purposefully making people uncomfortable just because I happened to get cancer. That’s the way I feel about it anyway. I hate entitlement of all kinds, but that’s a whole rant for another time. So, I need hair on my head for all those people. My own department, well that’s different. And at my own desk, in the corner by the window…

So once I got the hat, I ran back upstairs, ripped the hair off, and put on my super soft hat. Relief! Then the nose bleeding thing started…It’s a side effect from the chemo that I am not enjoying. I’ve already got that horrible winter nose and it’s going to stay that way for months. Not fun. Don’t get me started on the acne side effect either. My face has texture, like the walls in my house. No eruptions, just a consistently inconsistent texture that is red and jacked up. What about all those women I see with beautiful chemo skin? Where’s my beautiful chemo skin that looks angelic??? If you're going to have no hair, you should at least get the beautiful skin. But, I digress...

So, I’m sitting in my cube trying to get my work done and dealing with no hair, a damaged scalp, bloody nose, and not too pretty skin. But, I have work to do. So, since it’s just me…I had my wig on a make-shift wig stand (a roll of paper towels) and a Kleenex crammed up my left nostril securely but with the majority of it hanging out to try and stop the nosebleed. So, I’m typing away, feeling pretty good about my progress on something, and around the corner comes one of my co-workers. Cast your mind...no hair, Kleenex filled nostril, typing away like everything is normal. That's not what he expected to see, I'm certain! Based on the look on his face and the 25 blinks he had in 3 seconds, I don’t think that’s what he expected to see AT ALL…Now, no one comes to my cube anymore. We’re in a “call-first” pattern even if you’re a couple cubes away. How is that not hysterical? I wish I’d had a camera.

And I can laugh about it no matter what happens while I’m there because I have my very special boy to come home to. You know, the one that doesn’t see missing limbs, missing hair, or any kind of disability. He just loves me the way I am, in whatever state that might be. That’s such a beautiful gift.

Monday, October 5, 2009

The Unexpected Perks of Breast Cancer

Today was the first day back at work with my new “hair”. It was quite the decision trying to decide which one to wear. I like them all for different reasons. But, I settled on the one my sister bought me. It’s the only one that I’ve worn since the “shave” besides my Terry Bradshaw. I call it my Terry Bradshaw hair because there’s nothing on top just some hair around the sides. It’s “hat hair”. It’s also the most comfortable because it’s not itchy and it soothes the guilt of having purchased what I now know to be about 28 hats.

Work went well. It was kind of funny when I got there this morning. Some people bless their hearts, just don’t know what to do or say around a bald cancer patient with a wig. The first few people I encountered acted like I wasn’t wearing a wig. I felt kind of bad that they were noticeably trying to not look at my hair and terribly uncomfortable. Then it kind of became funny. I shouldn’t laugh at others discomfort, but talk about an elephant in the room! Really? I say this because my new hair is so totally different than my real hair was. My real hair is naturally curly and shoulder length. Today I have long straight hair that is layered and only curled on the ends. It would have had to grow 7 or 8 inches over the weekend to be mine. Call Ripley’s we got a “Believe It or Not” situation over here. Everyone else was complimentary and kind. Not one asked why it wasn’t pink…

Now that the shave is behind me, I have to talk for a minute about the unexpected perks of having cancer. I say this with all sincerity, but not to diminish the seriousness of this nasty disease. It’s terrible. It kills people for goodness sake. So, please understand that I’m just looking at this situation from the inside and there are a couple of perks to enjoy while going through all of the rest. They don’t make chemo worth it or the whole experience a good idea. I still recommend avoiding it all together. But, hey, as long as I’m dealing with it anyway…

I take back everything negative I said about hair as an accessory. It is a fine idea, a little itchy but EASY! The downside of having more than one look is trying to figure out which one to wear with what. When I got out of the shower this morning, my hair was already dry and styled. It’s like some “Jetson’s” set up, without the robots of course. And if it gets messed up during the day, you just have to stop by the house on your way to wherever and put on one of the others.

It’s also kind of fun to not be recognized anywhere. In plain sight, but out of sight...That is fun for a people watcher like me. Plus, getting to take it off when you get home is priceless. I know many women who look forward to ditching the bra after a long day. I used to be one of them. That’s a good feeling, but doesn’t even compare to ditching the hair. So, that’s a big perk.

Another thing is that you can do extremely stupid things and people excuse them because you’re just not yourself! Here’s an example. Right after I found out about my cancer and before our trip to Mexico, I was frazzled one day dropping Brayden off at Mom’s. Dad had the sprinkler on out front showering my normal path, and I broke my routine by pulling around back to drop him off. My sister and her family were living with Mom and Dad waiting to close on their new house at the time. So, blah, blah, blah a lot of cars in the driveway/parking lot.

When I came back outside to get to work, I backed straight into my sister’s car. Hard enough to smash both of our cars up pretty well. Her car got wrecked and she was in the shower at the time. So, I ran back in the house yelled, “I just wrecked mine and Michelle’s cars!! But, I've got to go to work! I'm late!! Tell her I’m sorry when she gets out of the shower!” (Keep in mind that she purchased her dream car about a year ago.) Not only was she not mad, she offered to pay my deductible because I was about to have so many medical bills. I didn’t let her, of course. But, when else can you smash up someone’s dream car and not only are they not mad, they offer to pay your expenses? Only when you have cancer. That’s when.

One last thing… I hate to even admit this, but I’ve done it. So, here goes. Have you ever wanted to get out of a situation really badly? You know, just can’t seem to end a conversation that should have ended long ago and you’re annoyed? As I have said before, people just don’t know what to say about cancer. So, if you bring it up, you can effectively silence them and escape. It went something like this...

When I went to get my rental car from the accident while the body shop fixed both mine and Michelle’s cars, it took forever. There were 2000 (slight exaggeration) people there and I waited over an hour (NO exaggeration whatsoever). So finally after much negotiation, they had a car for close to the price of my insurance coverage. So, I pay 5 bucks a day out of pocket and think I’m on my way. But, no. We have to have an additional 10 minute conversation about the extra insurance. At the end of it, I had about had it. Still being nice, but getting seriously annoyed on the inside. As a sales person myself I can respect the attempt to close me, but I HATE pushy sales people. They give all of us a bad name. Sometimes NO means NO, especially after the fourth one.

So when he said to me, “What about this doesn’t seem like a good deal to you? How is it unfair?” He was talking about me paying an extra 20 something dollars a day for coverage I already have with MY insurance after we just spent an hour looking for and negotiating on the price of a rental car. A car that they finally produced for me because they didn’t have any more for my $30/day coverage. They had already given everything else away, but wouldn’t turn loose of the claim so that I could go elsewhere. Yeah, then. So I said, “Fair has nothing to do with it, all of the extra money I have right now is going to pay for my cancer.” To which he responded (once he recovered and closed his mouth) “Please initial here.” Checkmate. Escape achieved, even if it did mean playing the cancer card. I have to admit it was the only enjoyable thing about the whole experience and the only time in more than an hour that he actually quit talking, was speechless in fact. I chuckled all the way home because the look on his face was priceless. So, I have to add effectively silencing people like that as a perk, too.

The point I guess is to find the humor in it all. I can’t imagine life without it. Sometimes the only thing that will get you through is the humor. I can’t even begin to count the number of times something so awful, or a series of things strung together, has caused me to laugh uncontrollably. And that’s where the key is hidden. It’s all uncontrollable anyway. As much as we plan and think we’re controlling things, we’re just not. So, sometimes you just have to stand back, take it in, and chuckle.

Saturday, October 3, 2009

The Fronts of Life Blow in...



One of the coolest things about living in the Dallas area is the weather. Now, I'm not talking the triple digit heat of summer. That's what you put up with just to get to live here. The great weather is just around the corner. Fall in Dallas is the best time of the year. It's also one of the times when we get to see storms blow in from out of no where. We just happen to be in a part of the country where the weather patters from the east and the west collide and on occasion it also includes some Arctic air are straight down from Canada. These events create fronts that draw a distinct line across the sky. It's a clear line of demarcation from what was to what is to come.

You see that line as it approaches, knowing that blue sky will give way to black clouds and violent storms. We had one of these on Thursday afternoon. It happened to hit just as we were leaving work in Denton for our much too long commute back to Dallas. Thankfully, Brian was driving because neither Carol or I could have stood the stress of the torrential rain while behind the wheel. It came out of no where, eclipsed the sky and dumped so much rain that you couldn't even see the front of the car much less the other cars around us. Yet, we drove right on through it.

Sitting in that back seat I couldn't help be so thankful that Brian was there to drive us. Neither one of us felt we could have made it through it. So, as I sat there putting my complete trust in his hands to get me home, it reminded me of how our relationship should be with God. He should always be behind the wheel, driving us through no matter what the weather.

Life is a series of these storms. Some of them we see coming and some we just look up and there it is out of no where. We are not prepared and have no shelter to protect us from it. The real question is whose hands do we depend on to get us through in the storms? We know who it should be. But do we go there first? Or do we try to handle it ourselves?

I've gone both ways on this, but I can only recommend one of them. It's the one where you totally surrender it to God and know that he will fix it. I spent years trying to handle everything myself. It's exhausting. I'm just not doing that anymore. People ask me all of the time how I'm handling this cancer thing so well. It's because I'm not handling it. I'm participating, but not handling it. It's what freedom is really about. It reminds me of the disciples when they were out on the water with Jesus in the boat. He was sleeping so when the storm kicked up, they became terrified. They thought they would perish and that he was going to sleep through the whole thing! Instead, He got up rebuked the waters and settled the storm. Then He asked them, "Where is your faith?" How often are we in that same boat? Knowing Jesus is right here with us, yet we feel as if we will drown. In that case, Where is OUR faith?

The beauty of it is that those fronts, and storms aren't forever. Just as quickly as it appeared on Thursday, it left. And as I was approaching home I was reminded of something beautiful. The backside of any front brings with it the sun and renewal. So, I snapped that picture from the side of my car (driving 45 miles and hour looking out the side window) as a reminder. No matter how dark the storm or black the night, He will always get us through to the other side. And take a look at how that other side looks! Gorgeous sun and clear skies... I can honestly say that I have experienced no storms in my life that didn't leave me changed for the better once they passed.

Today I made it through a "storm" that's been haunting me for a while. I got my GI Jane. Buzzed all of my hair and had my wigs fitted, and it was great! We laughed about it and had no tears whatsoever. I'm getting to fight on my terms. Blue skies ahead, black cloud gone. Now we're one step closer to getting this done. We actually had fun. Thanks to Sharon for being my video woman and support that was forbidden to cry. You did a great job. Thanks to Tracy and everyone at All About You. You are all wonderful. I couldn't have done it without you. And as I left there...nothing but blue skies ahead and that front line behind me.
 

©2009 80% Sporadic | by TNB