Last time I was here, I was pretty angry. Angry enough to title my entry as such, but that subsided as soon as I finished typing. From that point, it became necessary to figure out exactly how I am going to deal with all of the latest developments. Anger is always a flashover for me. It happens fast and it’s really hot, but wanes as fast as it arrives. Thankfully, I just don’t stay angry. So, I decided to do something about it, to the best of my ability. I made a phone call, and went that evening to my nail lady, Lynn, to see if she could help. Turns out, she can. We’ve established a plan and sufficient camo for my nails as long as they don’t get much worse. We will see. She’s a miracle worker so far. But, I now have 6 of 10 that have been affected to one degree or another. So, I don’t yet know what the outcome is going to be or how long I can mask it.
As for the rest of the physical changes, well they’ve become quite the pain. Originally there was some time advantage to losing my hair. I can do my hair in the evenings, put it on the stand on the dresser and slap it on in the morning. Sounds like a time saver. That is until the brows and lashes go…
Now, I spend 30-45 minutes a day trying to glue and paint on the hair that is supposed to be there. Since I have 1 hair left in my left eyebrow and only a few on the right, it takes quite a long time to recreate them in a realistic manner. The goal is that no on notices the difference. I can achieve that, but it takes time! One wrong stroke and you can look pretty weird. I certainly don’t want to look surprised all of the time or like I’m glaring at everyone. They can’t be too long, too short, too fat, or too slim. “Too” anything is a definite problem. Dr Seuss could write a book...
It’s also very important that I take my brow kit with me when I go to work or anywhere else. I learned this the hard way. It’s pretty funny really. I was in a meeting with one of my co-workers not that long ago and got an itch on my forehead. So, I scratched it. No big deal, right? Wrong!! I forgot that one good momentary swipe could remove 10-15 minutes of work and a brow.
He looked up from the document we had been working on with a strange look about the same time I noticed all of the brown stuff on my hand. Being tragically shy like I am, I said, “Crap! There goes my eyebrow! Can you tell?” Talk about taking a meeting off task…I don’t think he looked up from the document another single time for the duration of the meeting. I had to chuckle. If all of these things weren’t happening to me, I’d probably be uncomfortable, too. But, they are happening to me so I get to laugh at other people’s discomfort. It’s pretty funny.
Turns out, the answer to my question was YES! you could tell, although he was too polite to say so. I walked around the rest of the day with a left eye brow that was about an inch long because I didn’t have “the kit” with me. So I have learned that with cancer, the brow kit is like American Express. Don’t leave home without it!
So, about the eyelashes. Here’s a bullet that I thought I dodged because chemo has been over since January and I still had enough lashes to look normal. That was until the week before last…Now I don’t. I have none on the bottom and what I can only describe as several on each top lid. That’s more than 3, but less than 10. It’s a pitiful state of affairs.
I’ve seen people that lose them and you just can’t really tell the difference. I’m not one of those people. Without my eyelashes, my eyes disappear. So, I am getting used to gluing them on.
I found some that look almost exactly like my real ones. So, they look good as long as they stay on, that is. I haven’t quite mastered the exact science of how much glue is enough. I have one more than half hanging off my face by the end of the day about 30-40% of the time. On those days I have underestimated. Last week I overestimated. I had glue all over me, the bathroom counter, the eyelashes, my eyelid, just about everywhere.
It’s tricky stuff! It doesn’t set up right away. You have to apply it, wait for about 2-3 minutes and then try to stick them on. The “wait 30 seconds” recommendation on the box of glue is a gross underestimation. If you do it too soon, they won’t stick. You just get glue everywhere. Then when it sets up, whatever has glue on it gets glued to something. I have glued my eye shut. I have glued my eye open. I have glued my fingers to the lashes and to the eye. There are any number of ways you can get it wrong. I’ve accomplished all of the ones I can think of so far. But, then there’s always tomorrow… The funny part is that I make all of this effort each day to look normal. That’s such a low standard! I’m not trying to look “the best” or to stand out in some way, just achieve normal.
The irony of that hit my while my finger was glued to my eye the other day. How many people do I pass each day that are doing the same thing for far less obvious reasons? How many people do I encounter each day that are putting on a good face, but are so broken inside? They look normal, but are one small disaster away from giving up. People that are one more late payment away from homelessness, or one broken relationship away from feeling complete rejection. Their troubles are so much greater than mine. Do they know that there’s actually a place of unconditional love? Do they know how much has been given for them already? If they don’t, I hope that one day I will have the chance to tell them. I think it was Mother Theresa that said, “You don’t know Jesus is all you need until he’s all you have.” For me, that required many wasted years and a little cancer. But that’s ok. The lesson was well worth the price.
Monday, March 22, 2010
Thursday, March 4, 2010
Angry
There have been very few times that I have been truly angry during this cancer battle. I’ve been scared, hurt, sick, despondent, and probably a few other things during this time, but real red-hot anger hasn’t been one of them. Angry is actually too reserved of a word for what I am feeling. I’m pissed, plain, undiluted, flat-out PISSED!! (I know that is a “bad” word, Mom. But, if I typed what was really running through my head it would be so much worse.) I may be forgiven, but I’m certainly not cured of my human condition.
I just don’t understand. No one prepared me for this. How far does it have to go? What lesson have I not already learned? Exactly how vain WAS I that deems this necessary? I just don’t get it. What else???
That’s a question that I don’t usually ask. In fact, just the sound of it coming out of the mouth of someone else puts fear in my heart for them. But, I ask it today because I just don’t think there’s anything left. Even as I type this I feel sick from asking. But would any of you feel any different? If so, help me understand. Believe me, I NEED the help. Let’s just go down the list of ways this stupid cancer have stripped and stolen from me…
First, there’s the hair. Every woman who gets cancer fears it, most deal with it. Heavens knows that I have spent enough time here talking/whining about it. So, why stop now?
I realized yesterday that even though I finished chemo on January 8th, the effects on my body continue to worsen in some ways. After I got out of the shower last night I was looking in the mirror to remove eye make-up and noticed that I have now lost all but 1 hair of my left eyebrow. ONE hair! My right has a few, some of which need to be plucked. You see, the good ones keep falling out, but some of the bad ones have decided to make a return. I plucked a lone black hair out of my chin this morning, too. Really??? Are you kidding me? It wasn’t there yesterday…how did it grow an inch long overnight when I have just 1 eyebrow hair?? What, did you lose your way? Take a right when you should have taken a left at the nose or something? How can this be?
I thought I dodged the eyelash loss also, but no. Every round of chemo has taken some eyelashes with it. Until now, it was OK because I usually have so many. After I had lost half of them, I still had more than a lot of people. Eyelashes, long beautiful ones, have always been something that I took for granted. Lesson learned. Check that off the list. Last night I also realized that there were huge whole bald spots where my lashes used to be. After my shower this morning there were even fewer. I have two ¼ inch clumps on each eye left. So, this weekend I get to figure out how to apply the fake ones of those. That should be fun.
The irony of it is that as the “good” hair continues to fall out, the “bad” had returned. If you have no hair on your head, no eyebrows, no eyelashes to speak of, you should not have to shave your pits and legs! How ironic is that? Someone should call Alanis Morisette…she could write another verse to her old song.
Another lovely physical price of my treatment has been weight gain. Yeah, I said GAIN. If one more person asks me why I haven’t lost weight from cancer, I might just lash out and gut them. Now granted, I didn’t know breast cancer treatment made you gain weight either. But, I never would have said anything to someone fighting cancer about their weight. You’d be amazed at how many people do. If you’re lucky and contracted just the right kind of breast cancer, you can gain all kinds of weight. I’ve been fortunate enough to gain 30 pounds from it. No exaggeration. 30 freaking pounds! I visit all of my size 6 clothes each morning in the closet as I stuff my butt in ever shrinking 12’s.
This is particularly frustrating because I worked so hard to get the weight off after having Brayden. It took more than 8 months (once I started 18 months after his birth) to lose 68 pounds. I was thinner than I have ever been in my life and felt really good about the way that I looked. I kept it off for a long time, too! But, that all went out the window with the diagnosis. In the beginning you “treat” yourself to whatever you want because you have cancer. Then, the steroids begin their work. Then, the chemo starts its thing….next thing you know you’re fat. Only this time, it’s worse because you are also bald. Oh, and there’s that little thing about removing your breasts…because that makes you feel so good about yourself! When you remove body parts you should weigh less, not more!
Let’s add that up….no hair, no eyebrows, no eyelashes, and no breasts. Then the straw that broke the camel’s back, I’m losing my fingernails. This morning two of them turned loose almost all of the way back. It’s a side effect of my Taxotere. I knew “nail changes” were possible, but didn’t know that included LOSS. So, I have 8 that still look OK. But, 3 days ago they all looked OK. Only 22% of the time people experience nail changes. Way to miss the good 78%! Besides, I thought changes were lines, discoloration, etc. Not LOSS!
Anyway, it all adds up to me being incredibly angry. I know that this experience has permanently changed me. How could it not? I’ve never been in denial about that. I guess the anger comes from the fact that I thought I was on the upswing. I thought that the bad stuff was basically over. I thought that it was all uphill from here. I thought a lot of things. But, they were not to be.
I just don’t understand. No one prepared me for this. How far does it have to go? What lesson have I not already learned? Exactly how vain WAS I that deems this necessary? I just don’t get it. What else???
That’s a question that I don’t usually ask. In fact, just the sound of it coming out of the mouth of someone else puts fear in my heart for them. But, I ask it today because I just don’t think there’s anything left. Even as I type this I feel sick from asking. But would any of you feel any different? If so, help me understand. Believe me, I NEED the help. Let’s just go down the list of ways this stupid cancer have stripped and stolen from me…
First, there’s the hair. Every woman who gets cancer fears it, most deal with it. Heavens knows that I have spent enough time here talking/whining about it. So, why stop now?
I realized yesterday that even though I finished chemo on January 8th, the effects on my body continue to worsen in some ways. After I got out of the shower last night I was looking in the mirror to remove eye make-up and noticed that I have now lost all but 1 hair of my left eyebrow. ONE hair! My right has a few, some of which need to be plucked. You see, the good ones keep falling out, but some of the bad ones have decided to make a return. I plucked a lone black hair out of my chin this morning, too. Really??? Are you kidding me? It wasn’t there yesterday…how did it grow an inch long overnight when I have just 1 eyebrow hair?? What, did you lose your way? Take a right when you should have taken a left at the nose or something? How can this be?
I thought I dodged the eyelash loss also, but no. Every round of chemo has taken some eyelashes with it. Until now, it was OK because I usually have so many. After I had lost half of them, I still had more than a lot of people. Eyelashes, long beautiful ones, have always been something that I took for granted. Lesson learned. Check that off the list. Last night I also realized that there were huge whole bald spots where my lashes used to be. After my shower this morning there were even fewer. I have two ¼ inch clumps on each eye left. So, this weekend I get to figure out how to apply the fake ones of those. That should be fun.
The irony of it is that as the “good” hair continues to fall out, the “bad” had returned. If you have no hair on your head, no eyebrows, no eyelashes to speak of, you should not have to shave your pits and legs! How ironic is that? Someone should call Alanis Morisette…she could write another verse to her old song.
Another lovely physical price of my treatment has been weight gain. Yeah, I said GAIN. If one more person asks me why I haven’t lost weight from cancer, I might just lash out and gut them. Now granted, I didn’t know breast cancer treatment made you gain weight either. But, I never would have said anything to someone fighting cancer about their weight. You’d be amazed at how many people do. If you’re lucky and contracted just the right kind of breast cancer, you can gain all kinds of weight. I’ve been fortunate enough to gain 30 pounds from it. No exaggeration. 30 freaking pounds! I visit all of my size 6 clothes each morning in the closet as I stuff my butt in ever shrinking 12’s.
This is particularly frustrating because I worked so hard to get the weight off after having Brayden. It took more than 8 months (once I started 18 months after his birth) to lose 68 pounds. I was thinner than I have ever been in my life and felt really good about the way that I looked. I kept it off for a long time, too! But, that all went out the window with the diagnosis. In the beginning you “treat” yourself to whatever you want because you have cancer. Then, the steroids begin their work. Then, the chemo starts its thing….next thing you know you’re fat. Only this time, it’s worse because you are also bald. Oh, and there’s that little thing about removing your breasts…because that makes you feel so good about yourself! When you remove body parts you should weigh less, not more!
Let’s add that up….no hair, no eyebrows, no eyelashes, and no breasts. Then the straw that broke the camel’s back, I’m losing my fingernails. This morning two of them turned loose almost all of the way back. It’s a side effect of my Taxotere. I knew “nail changes” were possible, but didn’t know that included LOSS. So, I have 8 that still look OK. But, 3 days ago they all looked OK. Only 22% of the time people experience nail changes. Way to miss the good 78%! Besides, I thought changes were lines, discoloration, etc. Not LOSS!
Anyway, it all adds up to me being incredibly angry. I know that this experience has permanently changed me. How could it not? I’ve never been in denial about that. I guess the anger comes from the fact that I thought I was on the upswing. I thought that the bad stuff was basically over. I thought that it was all uphill from here. I thought a lot of things. But, they were not to be.
Thursday, February 25, 2010
The Business of "Becoming"
Becoming who we are supposed to be ought to be easier it seems. Maybe it would have been if I had started earlier. But, for whatever reason, that’s not the plan. Besides, I wouldn’t be who I am without all of those years of “experience”. Most of the time, I believe that. Some days I think it’s just what we tell ourselves so that we can deal with all of the wasted time.
Either way, I had a wonderful revelation last week and I thought it was worthy of sharing in case someone else was in the “are we there yet?” mode of personal development. At our leadership conference at church last week we had the opportunity to hear from our pastor’s father. He’s a wonderful pastor himself. Dr Young is quite different from his son, but they are both master communicators. He spoke on our need to get focused on “becoming” instead of so much doing. In other words, once we become who we are supposed to be, the “doing” will take care of itself as the fruit that bears witness to the work God has done in our lives. I had never thought about this in exactly this way.
The example that he used to explain is one I love to examine. He used Paul. I love Paul’s story. He’s one of my very favorite characters of the Bible. How could you not love Paul’s story? Most of us love a good redemption story, and there is none better than Paul’s. Here’s a guy who actually persecuted/murdered Christians until the day that he was on his way to Damascus and Jesus appeared to him. He was blinded for 3 days, regained his sight, converted in a BIG way, and then eventually went on to write over half of the New Testament. Even Hollywood couldn’t think up a redemption story like that!
But, it wasn’t those events of his life that were news to me. The “a-ha” moment came in what isn’t included in the story that I’ve known for years. You see, apparently Paul failed miserably in converting other people immediately following his conversion. He was on fire, but very ineffective. Somehow I missed that part of the story. Turns out that somewhere between 13 and 18 years passed before that changed. That’s a lot of years!!
So, there were all of those years of preparation and development before he was ready to be used in the most incredible way. Even Paul had to “become” before he could do what he was created to do. Now, I have no misconception that my plan is a fraction of the plan that God had for Paul. I mean he brought the Gospel to the western world for goodness sakes. But the truth is that I don’t know what it is yet. I’m still in preparation mode.
My pastor says regularly that whatever we are going through, God is preparing us for what he has already prepared for us. Isn’t that cool? I’m like a child waiting for Christmas morning knowing the gift is so much better than anything I could ever imagine. So now I want to be about the business of “becoming” so that I can find out exactly what that is. I don’t know where it will take me or who I will encounter along the way, but I do know that I will be pleasantly surprised. I always am.
Either way, I had a wonderful revelation last week and I thought it was worthy of sharing in case someone else was in the “are we there yet?” mode of personal development. At our leadership conference at church last week we had the opportunity to hear from our pastor’s father. He’s a wonderful pastor himself. Dr Young is quite different from his son, but they are both master communicators. He spoke on our need to get focused on “becoming” instead of so much doing. In other words, once we become who we are supposed to be, the “doing” will take care of itself as the fruit that bears witness to the work God has done in our lives. I had never thought about this in exactly this way.
The example that he used to explain is one I love to examine. He used Paul. I love Paul’s story. He’s one of my very favorite characters of the Bible. How could you not love Paul’s story? Most of us love a good redemption story, and there is none better than Paul’s. Here’s a guy who actually persecuted/murdered Christians until the day that he was on his way to Damascus and Jesus appeared to him. He was blinded for 3 days, regained his sight, converted in a BIG way, and then eventually went on to write over half of the New Testament. Even Hollywood couldn’t think up a redemption story like that!
But, it wasn’t those events of his life that were news to me. The “a-ha” moment came in what isn’t included in the story that I’ve known for years. You see, apparently Paul failed miserably in converting other people immediately following his conversion. He was on fire, but very ineffective. Somehow I missed that part of the story. Turns out that somewhere between 13 and 18 years passed before that changed. That’s a lot of years!!
So, there were all of those years of preparation and development before he was ready to be used in the most incredible way. Even Paul had to “become” before he could do what he was created to do. Now, I have no misconception that my plan is a fraction of the plan that God had for Paul. I mean he brought the Gospel to the western world for goodness sakes. But the truth is that I don’t know what it is yet. I’m still in preparation mode.
My pastor says regularly that whatever we are going through, God is preparing us for what he has already prepared for us. Isn’t that cool? I’m like a child waiting for Christmas morning knowing the gift is so much better than anything I could ever imagine. So now I want to be about the business of “becoming” so that I can find out exactly what that is. I don’t know where it will take me or who I will encounter along the way, but I do know that I will be pleasantly surprised. I always am.
Wednesday, February 24, 2010
Terror in Troop 282
I still can’t believe how much of this experience is about hair. From diagnosis on, every stage has something to do with stinking hair! First you mourn the coming loss. Then, you shop for temporary hair, which turns out to redefine the word temporary for you. (It’s a lot longer than you think it’s going to be in the beginning.) Then you finish treatment, and begin the long wait of regrowth. The experience of losing your hair teaches you so much more than you ever wanted to know about your own value and definition of beauty. It’s a lesson I could have lived without, but I am better for the experience. Turns out that no matter how secure we fancy ourselves to be, the truth is something different entirely.
Somewhere in the middle of this experience, you become so much more comfortable with your loss of hair than other people are. This is a great place to arrive. It makes for all kinds of opportunities of laughter. In the beginning, I was so self-conscious about it. I was terrified that people could tell. I thought everyone was looking. It was completely obsessive! Now, look if you want. It’s making you a lot more uncomfortable than me. Of course, I say that with one possible exception. During the time that I was far too sick to do anything but make it to work and then spend my weekends in bed to recover, I had an unexpected encounter with a girl scout. I dare say she will remember it for the rest of her life…
It was a Saturday afternoon and as normal on Saturdays at the time, I was in bed. We had family in town for the weekend staying with either Michelle or Mom. I can’t remember who exactly. I mention this because none of the following events would have transpired if no one was in town. If we hadn’t had family in town, I would have never thought to answer the door because I don’t answer the door. If you come to my house without calling to ASK first, you won’t find anyone home. I might be home, but you will not find me there. As a single mom, that’s just being safety minded. The truth is that safety is just a by-product of training people to not drop in. I promise not to drop in on you, please do the same for me. (Yes Mom, I mean you, too.)
So, I’m in bed sound asleep on this Saturday afternoon around 4:00. All of a sudden, I hear a rather loud knock on the front door. Well, half expecting someone to walk in, I jumped out of bed to see who it was. Since I didn’t hear a key in the lock but saw someone standing there, I whipped open the door in a confused and groggy state. I was literally waking up during this whole thing. Much to my surprise, and hers, there stood a poor little girl scout. She was probably nine-ish if I were venturing a guess. Before she or I realized what was going on, she asked, “Would you like to buy some cookies?”
As the horror from what she was looking at washed across her face, I realized that in my haste to get to the door that I had grabbed neither a wig nor a hat. I had also taken a shower before the nap, but failed to remove my eye make-up from the day before. In my defense, I expected this to be family! So, here I stood in all my kiwi-like glory half asleep with huge black circles of yesterday’s make-up around my eyes terrifying some poor girl scout. Needless to say, she had the presence of mind to wish me well as she turned and ran away.
Add to that the fact that I had not opened my front door in months. (Neither had anyone else…) So, there were cob webs everywhere. It looked like the Adams family lived there, and Uncle Fester just answered the door! I wish I could have heard her tell it. She may never sell another cookie. But, who sells things door to door anymore? I bet she’ll think twice about it next time.
Somewhere in the middle of this experience, you become so much more comfortable with your loss of hair than other people are. This is a great place to arrive. It makes for all kinds of opportunities of laughter. In the beginning, I was so self-conscious about it. I was terrified that people could tell. I thought everyone was looking. It was completely obsessive! Now, look if you want. It’s making you a lot more uncomfortable than me. Of course, I say that with one possible exception. During the time that I was far too sick to do anything but make it to work and then spend my weekends in bed to recover, I had an unexpected encounter with a girl scout. I dare say she will remember it for the rest of her life…
It was a Saturday afternoon and as normal on Saturdays at the time, I was in bed. We had family in town for the weekend staying with either Michelle or Mom. I can’t remember who exactly. I mention this because none of the following events would have transpired if no one was in town. If we hadn’t had family in town, I would have never thought to answer the door because I don’t answer the door. If you come to my house without calling to ASK first, you won’t find anyone home. I might be home, but you will not find me there. As a single mom, that’s just being safety minded. The truth is that safety is just a by-product of training people to not drop in. I promise not to drop in on you, please do the same for me. (Yes Mom, I mean you, too.)
So, I’m in bed sound asleep on this Saturday afternoon around 4:00. All of a sudden, I hear a rather loud knock on the front door. Well, half expecting someone to walk in, I jumped out of bed to see who it was. Since I didn’t hear a key in the lock but saw someone standing there, I whipped open the door in a confused and groggy state. I was literally waking up during this whole thing. Much to my surprise, and hers, there stood a poor little girl scout. She was probably nine-ish if I were venturing a guess. Before she or I realized what was going on, she asked, “Would you like to buy some cookies?”
As the horror from what she was looking at washed across her face, I realized that in my haste to get to the door that I had grabbed neither a wig nor a hat. I had also taken a shower before the nap, but failed to remove my eye make-up from the day before. In my defense, I expected this to be family! So, here I stood in all my kiwi-like glory half asleep with huge black circles of yesterday’s make-up around my eyes terrifying some poor girl scout. Needless to say, she had the presence of mind to wish me well as she turned and ran away.
Add to that the fact that I had not opened my front door in months. (Neither had anyone else…) So, there were cob webs everywhere. It looked like the Adams family lived there, and Uncle Fester just answered the door! I wish I could have heard her tell it. She may never sell another cookie. But, who sells things door to door anymore? I bet she’ll think twice about it next time.
Tuesday, February 23, 2010
Coming Back to Life
They say that hindsight is 20/20. I’m not so sure about the 20/20 part, but it is clearer than recognizing where you are in the moment. I say this because I have just realized in the last week how sick I have truly been over the last few months. This is not really news to anyone but me. But, that’s me. I can’t remember recognizing any challenge in my life for what it was in the moment. It’s only after the fact that the realization hits home. I probably couldn’t have made it through as well as I did if I realized what I was up against. I have made it through some incredibly powerful poison.
Everyone knows chemo takes a toll on you. You just don’t realize how much until you go through it. I spoke with my breast surgeon’s nurse practitioner yesterday to schedule my follow-up. She asked how I was, and I told her how difficult it had been. She said something kind of profound. She said, “When you go through what you’ve been through, you have to decide what you’re going to show up for. And, it can’t be everything.” I wish someone had said exactly those words to me in the beginning. (Of course knowing me, it probably wouldn’t have helped.) But, that was it. It captured exactly what I had not been able to put into words. I HAD to show up for work with very few exceptions during this time, and when that was done my tank was empty. There was nothing left for life or even Brayden on most days. I am so blessed to have such a strong and independent little man in the making. Oh, and there’s the Wii…Thank you, God for the Wii! It did wonders to entertain when I could not.
So, I counted and it’s actually been 7 months since my surgery as of next week. Wow! I guess I can honestly say that I have completed the most difficult 7 months of my life to date. I’d like to say they will be the most difficult that I will face in this lifetime, but I don’t make statements like that anymore.
I am marking the end of that time not because I am all better, but because I have decided that it’s finally time to begin coming back to life. I still can’t do most of the things that I used to. I went to our church’s leadership conference 3 evenings this past week. Just being able to walk from the car to the building at the expansive main campus after a full day of work is an incredible feat that involved a bunch of prayer. But, I did it! I spent all day Saturday recovering from it. (It was worth it, even if I did have to watch curling all afternoon.) What an amazing few evenings!
But, my greatest physical accomplishment since the end of chemo was Sunday after church. For the very first time since November I went grocery shopping for my very own groceries. Before now, I have been unable to do it because I couldn’t walk far enough to even make it to the milk, much less all around the store for the things I needed. Fortunately, Bird has been volunteering to do it for me. (That’s a great testimony for staying friends with your ex-husband…) So, we haven’t starved or anything.
It was probably the single best grocery shopping experience of my life. I say that because I have always detested grocery shopping. I love having a house full of groceries, but hate the shopping to get them part. It’s amazing what appreciation you can have for something you detest once you can no longer do it for yourself.
When I got to the store, I had not completely committed to a full grocery trip. When I made it to the milk without thinking about it, I decided to push through and cover the entire store. End to end I went and covered my entire mental list. When I got back to the car, buckled Brayden in, and pulled away I couldn’t believe what I had just done. It was then that I decided the time had come to rejoin the land of the living.
Today I actually chose to take the stairs at work for two different trips to other floors, down and up. I wouldn’t have even considered doing that a week ago. It was difficult. The second trip was more than I probably should have tried, but I did it. So, I am looking for that little opportunity each day to push myself a little further. One more step into recovery, into life.
Coming back to life feels good, physically and mentally. I am reminded daily to “give thanks in all things”, even if those things are the mundane ones like stocking up on groceries. So, I am attacking life again with the spirit of thanksgiving despite less than perfect circumstances. Because in the end, I have much more to give thanks for than to complain about.
Everyone knows chemo takes a toll on you. You just don’t realize how much until you go through it. I spoke with my breast surgeon’s nurse practitioner yesterday to schedule my follow-up. She asked how I was, and I told her how difficult it had been. She said something kind of profound. She said, “When you go through what you’ve been through, you have to decide what you’re going to show up for. And, it can’t be everything.” I wish someone had said exactly those words to me in the beginning. (Of course knowing me, it probably wouldn’t have helped.) But, that was it. It captured exactly what I had not been able to put into words. I HAD to show up for work with very few exceptions during this time, and when that was done my tank was empty. There was nothing left for life or even Brayden on most days. I am so blessed to have such a strong and independent little man in the making. Oh, and there’s the Wii…Thank you, God for the Wii! It did wonders to entertain when I could not.
So, I counted and it’s actually been 7 months since my surgery as of next week. Wow! I guess I can honestly say that I have completed the most difficult 7 months of my life to date. I’d like to say they will be the most difficult that I will face in this lifetime, but I don’t make statements like that anymore.
I am marking the end of that time not because I am all better, but because I have decided that it’s finally time to begin coming back to life. I still can’t do most of the things that I used to. I went to our church’s leadership conference 3 evenings this past week. Just being able to walk from the car to the building at the expansive main campus after a full day of work is an incredible feat that involved a bunch of prayer. But, I did it! I spent all day Saturday recovering from it. (It was worth it, even if I did have to watch curling all afternoon.) What an amazing few evenings!
But, my greatest physical accomplishment since the end of chemo was Sunday after church. For the very first time since November I went grocery shopping for my very own groceries. Before now, I have been unable to do it because I couldn’t walk far enough to even make it to the milk, much less all around the store for the things I needed. Fortunately, Bird has been volunteering to do it for me. (That’s a great testimony for staying friends with your ex-husband…) So, we haven’t starved or anything.
It was probably the single best grocery shopping experience of my life. I say that because I have always detested grocery shopping. I love having a house full of groceries, but hate the shopping to get them part. It’s amazing what appreciation you can have for something you detest once you can no longer do it for yourself.
When I got to the store, I had not completely committed to a full grocery trip. When I made it to the milk without thinking about it, I decided to push through and cover the entire store. End to end I went and covered my entire mental list. When I got back to the car, buckled Brayden in, and pulled away I couldn’t believe what I had just done. It was then that I decided the time had come to rejoin the land of the living.
Today I actually chose to take the stairs at work for two different trips to other floors, down and up. I wouldn’t have even considered doing that a week ago. It was difficult. The second trip was more than I probably should have tried, but I did it. So, I am looking for that little opportunity each day to push myself a little further. One more step into recovery, into life.
Coming back to life feels good, physically and mentally. I am reminded daily to “give thanks in all things”, even if those things are the mundane ones like stocking up on groceries. So, I am attacking life again with the spirit of thanksgiving despite less than perfect circumstances. Because in the end, I have much more to give thanks for than to complain about.
Tuesday, January 12, 2010
The Mustard Seed
It's been an eternity since I have been here to post an entry. So much has changed and yet, nothing has. It's hard to explain. Things have gotten exponentially more difficult with the recovery from chemo, but it's officially over. Friday I had the last round of the nasty stuff. It's a relief, but has wrecked me physically since then. I have been in bed the majority of the time and can't really do much for myself at all. Mom is taking care of Brayden at her house and I just rest under my electric blanket. It has been the only thing that seems to take the edge off the aching of my entire body. The exhaustion is unexplainable at this point. It means that I am unable to do so many things. I look normal, but can't walk 50 yards without sitting down. It's hard to explain to people. I think 1/2 of them think I'm making it up because it's so severe but you can't see it. I actually look pretty normal with the exception of the kiwi-like head of mine. My hair is growing back a little...just enough to look exactly like a kiwi.
I have a lot of support with friends and family and that helps immensely. But, I can't help but feel weary from the whole thing. My carpool buddies now drop me off at the door because I can't walk from the car to the door anymore at work. Brayden is dying to go to Walmart and spend his $30 of gift cards from Christmas, but we can't because I can't walk through the store. By the time we got from the car to the shopping carts I would need somewhere to sit down.
This is also the first time that I have had so much trouble with the nausea. I haven't been sick, but the nausea is always there, even with the drugs. So, all of the physical symptoms are much worse than before. I'm doing OK from a psychological standpoint though and that's a welcome change.
I haven't blogged in over a month for more than one reason. One obvious one is that I just haven't had the energy to get on the computer when I get home from work. I work so far away from home that I have to spend 2-3 hours in the car each day for my commute. So, a normal work week translates into 60 hours with the commute. Add in a little chemo...no way you can do anything but fall out at the end of the day. But, that wasn't all that was going on. This whole experience had taken a toll on me emotionally. The last month has been the absolute hardest of all. Those days were dark ones and I don't even want to try to describe them. Needless to say, I made it through thanks to a scripture, the memory of a charm, and a gift from my boy.
I have a lot of support with friends and family and that helps immensely. But, I can't help but feel weary from the whole thing. My carpool buddies now drop me off at the door because I can't walk from the car to the door anymore at work. Brayden is dying to go to Walmart and spend his $30 of gift cards from Christmas, but we can't because I can't walk through the store. By the time we got from the car to the shopping carts I would need somewhere to sit down.
This is also the first time that I have had so much trouble with the nausea. I haven't been sick, but the nausea is always there, even with the drugs. So, all of the physical symptoms are much worse than before. I'm doing OK from a psychological standpoint though and that's a welcome change.
I haven't blogged in over a month for more than one reason. One obvious one is that I just haven't had the energy to get on the computer when I get home from work. I work so far away from home that I have to spend 2-3 hours in the car each day for my commute. So, a normal work week translates into 60 hours with the commute. Add in a little chemo...no way you can do anything but fall out at the end of the day. But, that wasn't all that was going on. This whole experience had taken a toll on me emotionally. The last month has been the absolute hardest of all. Those days were dark ones and I don't even want to try to describe them. Needless to say, I made it through thanks to a scripture, the memory of a charm, and a gift from my boy.
When I was a girl, my mother had a charm bracelet with a ton of charms from all of these places she had been and things that she did before I was born. I used to ask her to tell me about each of them sometimes when she wore it. I was always interested in this “life” she had before I was born. It seemed kind of mysterious. I mean what could she possibly have been doing before me?? Right? That’s so funny to me now that I’m a mom. Brayden can’t get the concept either. He still can’t figure out how his dad knows his aunts and uncles because he’s never seem them together. He can’t get past the fact that his dad was part of our family for over 10 years before he was born.
Anyway, buried between those charms from exciting places like West Virginia and Six Flags over Texas was one that I loved. I remember the first time that I saw it. I couldn’t tell exactly what it was. It was a little glass sphere that had this tiny round beige thing rolling around in it. It wasn’t any larger than the head of a pin. Finding that instantly intriguing, I asked her what in the world it was. That was the first time she shared with me the story of the mustard seed.
Mom told me that Jesus said that if we had even the faith of a mustard seed that we could move mountains. Even as a small child that spoke to me. It was tangible. I could see how little that was. It was so small, yet a mountain is SO big. How powerful our faith must be! I never forgot that.
Over the years that charm went missing. We don’t have any idea what happened to it. Mom has divided up the charms now. Michelle has some, I have some. But that one never resurfaced. I mourned that when it first happened, but had actually forgotten about it. Then came December this year.
This was by far the hardest holiday season ever. I've known people who struggle through the holidays. I know many have good reasons that the holiday season is hard. I have just never been one of them. Christmas in my family has always been a time that we look forward to and enjoy as the best time of the year. That's not to say they've always been perfect...We do have the year Nate dropped the Nikon, the year John ran away, the year I got my wisdom teeth pulled and permanently scarred my sister...Let's skip that story. Anyway, this year was different.
By Christmas, I was through round 5 of the chemo and not bouncing back. Christmas morning fell exactly one week after that round and with my immune system went a lot of other things. Emotionally, spiritually, and psychologically drained I wasn't looking forward to it and couldn't even fathom excitement for the new year. How could I have any? For the first time I just wanted to give up, check out, and quit the fight. After all, the whole year ahead is still all about the stupid cancer! I have treatment until September 17th, then I have to wait 60 days and have finial reconstruction in December 2010. So, I was facing Christmas with completely the wrong attitude and no hope for good things in the new year. It was the lowest of lows.
That changed a bit on Christmas morning. Brayden had gone shopping with Mom and was very excited about the gift that he had for me. I hadn't asked for anything this year, so I had no expectations. Now every mom loves a gift from their child. But like so many times before, he was about to bless me more than I could have imagined. His gift was a necklace. If you didn't know what it was, you'd never have a clue about the significance. But, I knew instantly. It was the outline of a small silver heart on a delicate chain, and encased in transparent center was a mustard seed.
It was exactly what I needed. With that I was reminded of how even a minuscule amount of our faith can do mighty things. At that point, it's about all I had. But, it was enough. Things are getting better, slowly. Each day is one more day past the last chemo, one day stronger, one day closer to recovery. And when I lose sight of that, I have a great little reminder hanging around my neck prompting me to go on and to rest in the reassurance that plans bigger than mine are unfolding. I just have to have faith.
Thursday, December 3, 2009
Tying a Knot
I am figuring out about now that this cancer thing isn’t a sprint. It’s a marathon. I knew that, but I wasn’t really living it until now. I guess in my mind I thought I would be different. Sure they know how others have reacted to this chemo thing, but I really was beginning to believe that I was going to set some new standard of ability to withstand the poison. Yeah, not true. I always think things like that. Always challenging myself to set some new standard, no matter how ridiculous.
The last two weeks have been long ones. No surprise, I took the new mammogram recommendation hard. It wasn’t just that though. That announcement happened to coincide with other events at work that really threw me for a loop. I spent about a week questioning my value in many arenas. Compound that with the fact that I had my 4th round of chemo 2 days before Thanksgiving, and it wasn’t pretty. So, I have been down for the count a good portion of that time.
The truth is that the greatest difficulty with chemo is the fatigue. I spent all this time worried about throwing up and that hasn’t happened once! They told me that the fatigue was cumulative. I heard them, but I wasn’t really listening. Then, I got through the first two rounds and believed that I wasn’t really going to feel it. I was so wrong! It’s all that I can do to get through the workday. My body aches and the smallest physical activity is exhausting. Just walking from the car to the front door at work makes my legs hurt incredibly. It’s not even far! I’ve done it hundreds of times before without a thought, taking for granted that I had the capability. Well, not anymore. Now the door kind of feels like a desert oasis that keeps inching a little further away with every step when in reality it’s maybe a 150 yards away to begin with. That's crazy and really hard to believe, even when it's happening to me. So when I make it home, it’s all that I can do to prepare for the next day. When Friday comes, I know I will have a couple of days to recover so that I can do it all again.
Another thing that wears on you over time is the bloody nose. It’s one of the things you don’t know or think about until you go through this. Before I had cancer, I never realized that when you lost your hair you lost basically all of it. That includes all of your nose hair. Guess what? You NEED nose hair. It actually serves a really good purpose. You miss it when you don’t have it! I have sinus trouble anyway because of allergies. Now that it’s time to turn on the heater in the house, that gets worse because there’s no humidity. So sinus + heater + chemo = bloody nose at any time. Sitting at my desk with a Kleenex shoved up my nose is a completely normal occurrence now. That, and a compulsive use of hand sanitizer.
For now, I'm just trying to tie a knot and hang on at the end of my rope. Fortunately, I have help. Thank you for all of the prayers and encouraging words. I need every one of them. I have always know that "The Lord is my strength.". But, it means something completely different to me now. I've never thought of it as physical strength. I guess because I've never been physically challenged before. Now I have. And, now I know that it's completely true. I just can't make it any other way.
The last two weeks have been long ones. No surprise, I took the new mammogram recommendation hard. It wasn’t just that though. That announcement happened to coincide with other events at work that really threw me for a loop. I spent about a week questioning my value in many arenas. Compound that with the fact that I had my 4th round of chemo 2 days before Thanksgiving, and it wasn’t pretty. So, I have been down for the count a good portion of that time.
The truth is that the greatest difficulty with chemo is the fatigue. I spent all this time worried about throwing up and that hasn’t happened once! They told me that the fatigue was cumulative. I heard them, but I wasn’t really listening. Then, I got through the first two rounds and believed that I wasn’t really going to feel it. I was so wrong! It’s all that I can do to get through the workday. My body aches and the smallest physical activity is exhausting. Just walking from the car to the front door at work makes my legs hurt incredibly. It’s not even far! I’ve done it hundreds of times before without a thought, taking for granted that I had the capability. Well, not anymore. Now the door kind of feels like a desert oasis that keeps inching a little further away with every step when in reality it’s maybe a 150 yards away to begin with. That's crazy and really hard to believe, even when it's happening to me. So when I make it home, it’s all that I can do to prepare for the next day. When Friday comes, I know I will have a couple of days to recover so that I can do it all again.
Another thing that wears on you over time is the bloody nose. It’s one of the things you don’t know or think about until you go through this. Before I had cancer, I never realized that when you lost your hair you lost basically all of it. That includes all of your nose hair. Guess what? You NEED nose hair. It actually serves a really good purpose. You miss it when you don’t have it! I have sinus trouble anyway because of allergies. Now that it’s time to turn on the heater in the house, that gets worse because there’s no humidity. So sinus + heater + chemo = bloody nose at any time. Sitting at my desk with a Kleenex shoved up my nose is a completely normal occurrence now. That, and a compulsive use of hand sanitizer.
For now, I'm just trying to tie a knot and hang on at the end of my rope. Fortunately, I have help. Thank you for all of the prayers and encouraging words. I need every one of them. I have always know that "The Lord is my strength.". But, it means something completely different to me now. I've never thought of it as physical strength. I guess because I've never been physically challenged before. Now I have. And, now I know that it's completely true. I just can't make it any other way.
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